So today I saw a link to this thing, which is more business-brain than I'd usually be interested in but this seemed so apropos for where my thoughts have been lately.

It starts with a vague anecdote about "a small group of leaders" gathering most of their people for two days of talking about "big changes to their organisation's mission."

The writer goes on, "These leaders were talkers. At the end of the second day of this, they were amped up and excited about the plans that had been hashed out." She contrasts these "talkers" with "writers":

The writers were on the whole befuddled and exhausted; they weren‘t sure what had been decided on, and when they tried to reflect on all that talking, it was a blur. They could feel the energy of the room was such that something exciting had happened but they didn‘t quite know what to think of it. They were uncertain if they had made themselves clear; they were uncertain of what they had wanted to make clear. They wondered if they were missing something, but they couldn‘t articulate what it was. They too sent thanks and thumbs up emojis, but they went home with a vague sense of dread.

I feel so seen here.

I do still think all the stuff I talked about yesterday plays a part too: disability, gender, race, class... But some of it is just personality or extro-/introversion or whatever too. There's more to it than this talker/writer binary (which the author does problematize a little too) but I do think this is a really interesting frame for me to use about work.

She says

In most orgs, talkers are overrepresented among the leadership [because] most of our models for leadership—meetings, town halls, presentations, interviews—privilege talkers...

The result is that a great many orgs have talkers at the top and writers down below, but because power obscures difference, the talkers are very rarely aware of this setup.

Power obscures difference is definitely one of the things I was fumbling around and spilling much more metaphorical ink trying and failing to say! Having such a succinct way to state something so prevalent in my life would already made this essay valuable to me, even if nothing else about it was.

The essay goes on with advice about what to do with this binary, but for me it was enough to stop here and just bask in having a situation I have been struggling to describe be explained so precisely.

What the leaders I observed did was optimize for their own mode of thinking.... In the course of that optimization, they effectively disenfranchised most of the writers among them. They left a lot of good brain power and potential alignment on the floor, and they didn‘t even realize it was there as they stepped over it on the way out the door.

I saw this because the author shared it on Mastodon, and I replied with my profuse thanks and one additional thought: I said "I'm frustrated at the ableism that's present in a talker-led society, even in groups that are for disabled people. And also, the talker ideal is less suitable without mitigations we rarely have in the ongoing global pandemic, so that's a disability justice issue as well." She called it "an astute observation," so that feels good anyway!

I am already disgusted by what we're calling "AI," what is actually scraping the language and art of human invention, ignoring copyright, and filtering that through the poorly-compensated labor of exploited people in a process so detrimental it causes similar long-term psychological impacts to that seen in content-moderators, consuming huge quantities of energy in the process...

As if I didn't have enough reasons to dislike it as implemented, here's another one, from someone talking about trying to depict his visibly disabled body via image generators:

Tech is not neutral. It can't be. It is always the sum total of human decisions, priorities, and tradeoffs, deployed to meet certain ends and desires, and particularly capitalistic interests. AI is far from being an exception to the rule. And in this case, any desire for image generation models to be able to represent me is going to butt heads with another incentive: the desire to avoid shocking users with body horror.

Successive model retrainings have made rendering humans much more accurate, and tighter restrictions on prompts have made it much harder to generate body horror, even intentionally. As a consequence, non-normative bodies are also incredibly difficult to generate, even when the engine is fed hyperspecific prompts.

It's not just that the training sets simply don't have examples of people who look like me. It's that the system is now explicitly engineered to resist imagining me.

…Hey, is now a good a time to mention that in an effort to "create a welcoming and inclusive community for all users," the Midjourney Community Guidelines consider "deformed bodies" a form of gore, and thus forbidden?

This is a fun read. And a good point!

Lucky you, reading this on a screen, in a warm and well-lit room, somewhere in the unparalleled comfort of the twenty-first century. But imagine instead that it’s 800 C.E., and you’re a monk at one of the great pre-modern monasteries — Clonard Abbey in Ireland, perhaps. There’s a silver lining: unlike most people, you can read. On the other hand, you’re looking at another long day in a bitterly cold scriptorium. Your cassock is a city of fleas. You’re reading this on parchment, which stinks because it’s a piece of crudely scraped animal skin, by the light of a candle, which stinks because it’s a fountain of burnt animal fat particles. And your morning mug of joe won’t appear at your elbow for a thousand years.

What could be worse than the cold, the fleas, the stink, and no coffee? Well. The script you are reading is minuscule, to save ink and space, and it’s written in scriptio continua. That’s right: you are plagued by headaches because spacesbetweenthewordsaremodernconveniencesthathavelikepunctuationandcoffeeandreadingglassesanddeodorantforthatmatternotyetbeeninvented. This is a constant source of difficultyambiguityfrustrationeyestrainanderrer.

Thank goodness for modernity, eh? Except for one strange fact. In our smugly “digital” age, our numbers are still waiting for modernity to happen.

My passport number is printed in a font three millimeters high in the middle of a cool white bath of space that would easily accommodate text four times larger. And, like all these numbers, it could have been printed in groups of three digits — but instead we get 210006647. Scriptio continua.

Would grouped passport digits, in a bigger font, make life easier for tens of millions of travelers? You can test this arcane theory yourself by acquiring a half-eaten sandwich, four shoulder bags, a sticky toddler with earache, a TSA security line with a broken scanner, skull-crushing jet lag, a small crumpled Customs Declaration, and a borrowed ballpoint that leaks. Now lean way forward until your head is upside down, balance your passport on one thigh, and decide which format your overtaxed human cognitive equipment prefers:

210006647

210 006 647

[231/365]

Aug. 19th, 2023 10:13 pm

Gary was such a good boy today. Super interested in food: he had only three lickimats because I wouldn't give him more when he asked, plus tons of treats in the many toys and games he asked for, plus two drinks of milk (milk -- that he can digest -- is both a treat for him and a way we can sneak calories into him when he refuses to eat otherwise).

Super happy, interested in walks and toys and playing with his humans too. There was a point, when I'd just made myself tea and hadn't had any breakfast yet, when I could hardly sit in a chair because every time I did he was asking for something else from me: food, more food, a walk, etc. I'm always happy to oblige; some days we can't get him interested in these things at all so I mostly like to indulge him when he is keen on them.

And while there were the usual amount of shenanigarys overnight, they weren't the sundowning kind and he's been bright and happy all day, with a minimum of random Feelings-having (it comes in the form of barks and growls and leads to us having to shove him in to his time-out area).

Quiet day for the humans. D and I stayed in bed until noon. I was still tired and I had a headache most of the day. But it was a pretty nice kind of quiet day, for me anyway: the sun was out, some chores got done, I finally got new ebooks on to my kobo and got a friend to help change the hard-coded fonts and other stylesheet features like justification when they actively stop me from being able to read the damn things. So lots of new-to-me books is exciting too; I'm starting with this one for now.

[189/365]

Jul. 8th, 2023 10:06 pm

I'm reading a book called Fat and Queer: An Anthology of Queer and Trans Bodies and Lives, which [personal profile] diffrentcolours bought at the queer bookstore the other week.

I'm really enjoying it but I can't read it too quickly, some of these little poems and essays are hitting hard! (It's not the most fun emotional catharsis I could have had today, but I definitely needed some after the last three days and this is what was available.) Mostly they make me want to write my own essay though.

Mine couldn't help but be about disability too. For all I love how intersectional it is in these two dimensions, and it's centering the experiences of people who aren't white, I haven't heard anything about disability yet which surprises me a little now that I'm halfway through the book.

Even though I place library holds at different (haphazard, random) times, and the Libby app estimates the different amounts of time the holds will take (which is really great: it'll say, like "you're Xth on the list, approximately Y weeks' wait, there are Z copies and A people waiting, so B people per copy"), I've hardly read anything for weeks, I've ignored my hold list, and in the last 24 hours or so they're all coming along at once.

So now I have

The Language of Butterflies: How Thieves, Hoarders, Scientists, and Other Obsessives Unlocked the Secrets of the World's Favorite Insect by Wendy Williams -- which I think I added after a review from someone here! Though it might have been Mastodon. I can't remember. It sounds like my kind of thing anyway
and
Momfluenced: Inside the Maddening, Picture-Perfect World of Mommy Influencer Culture which I'm excited about because I have read Sara Petersen's blog newsletter for a while now and really enjoy it.

And I've just had to delay How to Communicate, a book of poems by John Lee Clark, who I wrote about here.

Also today I bought a Humble Bundle of all the Murderbot audiobooks, which is wild because I was just saying yesterday that I needed to get them. I'd borrowed them all from the library but it wasn't enough, I really want to be able to revisit them. Serendipity! I also said I wanted to get most of the Becky Chambers books for the same reason, and to that I could add Ryka Aoki's Light from Uncommon Stars... if the universe wants to plop them in my lap in a similar fashion that would be okay with me!

I finished both The Republic of Pirates and A Prayer for the Crown Shy before I got out of bed this morning. Feels good to finish library books early when I know other people are waiting for them, as is the case with both of these.

And my hold of Legends & Lattes turned up yesterday, so I started that this evening.

I also had another hold appear today, I thought it was another audiobook (just because, I now realize, I've been reading all audiobooks lately) but it's an ebook so I've actually got to use my eyes! Weird!

I really love this piece, on spelling and queerness.

The word “queer,” as [Sara] Ahmed notes, comes from the Proto-Indo-European root *terkʷ-, meaning “turn” or “twist.” This, according to Ahmed, “gets translated into a sexual term, a term for a twisted sexuality that does not follow a ‘straight line,’ a sexuality that is bent and crooked.” Queer desire, she adds, “reaches objects that are not continuous with the line of normal sexual subjectivity.”

For this reason, it doesn’t seem like a coincidence to me that text interfaces indicate “incorrect” or “queer” words with wavy, squiggly, or discontinuous underlines. The exact design varies from one piece of software to the next, but the idea is the same. The “turned” and “twisted” line indicates the words that are “queer.” ... As an aside, I think it’s interesting that a fair etymological translation of the phrase tortured syntax in English might be something like “queer straightening up.”

...

Likewise, the squiggly line under a “misspelled” word is a trace. Sometimes a misspelling is primarily a record of a physical body: human fingers, at a particular moment in time, depressing buttons on a keyboard, following (successfully or unsuccessfully) a kind of score (in the form of a letter sequence). Sometimes a “misspelling” is the result of my linguistic subjectivity—say, the result of my having phonetically transcribed my own dialect. Misspellings are also records of social subjectivity: sometimes when the squiggly line shows up, it’s because I typed the word that I meant—like “transphobia”—even when that word names a concept that isn’t familiar to the culture around me.

There's a meme going around again, where people are answering five questions from their friends and then giving the first five people to ask five questions of their own.

I'm not sure how I'm going to be for thinking up questions for commenters, but I've accumulated ten questions so thought I would try to answer them.

First, from [personal profile] annofowlshire:

1. What brand (food or otherwise) do you miss most from the US?

Read more... )

2. How did Gary get his name?

Read more... )

3. Which book (or other media) has had the most impact on you?

Read more... )

4. With Twitter imploding everyone is talking about Mastodon now. You're really the only person I knew to use it before now. What do you like about it?

Read more... )

5. Do you find your 365 posts project to be helpful or a chore?

Read more... )

And, from [personal profile] jesse_the_k:

1. How did Gary the Wonder Dog come into your life?

Read more... )

2. Given how you enjoy touring history-made-tangible, is there a tangible monument you want to leave behind?

Read more... )

3. Have you been able to deploy Arabic knowledge lately?

Read more... )

4. Tell me about something you treasure that's older than you.

Read more... )

5. Tell me about your first baseball game -- have you ever played?

Read more... )

This article is full of beautiful, perfect sentences that I had to gleefully read out to the others even though I'd just sent them the link.

But the one that make me immediately envision an entire movie I now desperately need to see is:

[a past Princess Kay of the Milky Way finalist] describes the community of past Princess Kay finalists and winners as a sorority, a network of lifelong friends forever bonded by their buttery immortalization.

So, obviously they all have to team up. All this year's (whatever year it is) group, with some older ones, one badass old lady who came second place in like 1947 but has also outlived all her contemporaries so feels like she won in the end, a bunch of moms, an old lesbian or something...at least one trans guy for sure right.

I'm just not sure what kind of movie it is. My first thought was maybe a heist or they have to solve a crime, but then [personal profile] mother_bones suggested "the butter is poisoned" and having just read this article that made me think how the poisoned butter would threaten an entire small town at the corn feed held to use it all up... Maybe a slasher movie where someone bitter that they didn't get to be Princess Kay starts trying to pick them off.

Bitter Head could work as a title either way.

This is maybe the only baseball movie I really want to make [personal profile] diffrentcolours watch that we haven't watched yet -- just because it's not on streaming as far as I can tell -- and reading this about it just makes me want to watch it so much more! Read more... )

My weekly team meetings have an optional social chat for 15 minutes beforehand, I think to replicate this office chatter that we're all supposed to miss so much (I don't want to sound too dismissive; I do appreciate the value of low-stakes interactions and it is difficult to replicate them on Teams; this is certainly better than having a commute every day!).

Last week it was "a song that says something about you" and I hadn't prepared at all -- I'd actually only joined early because I was worried about the audio on my laptop not working and wanted to test it before the proper meeting -- so I panicked and the first thing that came to mind was "Born in the U.S.A.," because I was and because it was my first "favorite song," when I was three years old.

(I didn't get into it in a work context but something else it has in common with me is that the song tells you exactly what it is but so many people still misunderstand it anyway, which is why Reagan wanted to use for his re-election campaign.)

Anyway, today's question was "do you believe in aliens" so I was all over that. I love aliens. Not as a material reality necessarily (I'm agnostic on that), but aliens definitely exist as a phenomenon that says a lot about humans and our cultures -- about race, colonialism, government, power, mystery, gaslighting, how some things are unknowable and how we cope with that, how we see ourselves (or don't) as part of the universe -- and I believe in the importance of all of that stuff!

I was one of the first few people there so I totally set the tone of it to be all about this kind of stuff, haha. I talked a lot about racism and colonization and the weird comfort of being able to believe in worldwide governments so competent that they can consistently sustain a decades-long leak-proof conspiracy.

Much informed by my recent reading, like Sara Scoles's They Are Already Here and most especially The Unidentified by Colin Dickey, which I'd just finished the other day. It's about UFOs (and cryptids) as human phenomena that serve various sociological purposes for us in, especially, white Anglo-American culture and society. I ate it up, before I finished it I got another book of his out of the library too, Ghostland, which is the same but for ghosts and specific to the U.S. They are Extremely my kind of of books; I loved reading in the latter about how American ghost stories differ from European ones partly because of the inescapable horror of white people only existing there thanks to slavery and genocide. "Ghost stories are a way of talking about things we can't otherwise discuss," indeed.

So yeah not in so many words but that's what I talked about at work this morning!

I'm so new at this job and I'm already so weird.

I like books and podcasts about "weird stuff," stories of aliens and ghosts and mysteries. I think I remember the one where I first learned the story of "Somerton man," known for where he died because his identity was impossible to figure out.

Public interest in the case remains significant for several reasons: the death occurred at a time of heightened international tensions following the beginning of the Cold War; the apparent involvement of a secret code; the possible use of an undetectable poison; and the inability of authorities to identify the dead man.

I learned all kinds of weird details from this story, about what it was like being an Australian nurse during WWII and that the direction of diagonal stripes on a tie could tell you something about where it was made. All these little facets of life, lovingly detailed, none of them adding up to an easy answer.

And now

This week Prof Derek Abbott of the University of Adelaide claimed to have identified Somerton man as Carl “Charles” Webb, a 43-year old engineer from Melbourne who wrote poetry and “seems to be a bit of a loner”...archival records shed light on the seemingly mysterious facts of the case, revealing them to be “a sort of banal explanation”.

Even how they found out is kind of banal: DNA analysis of hairs from a plaster cast taken of the dead man's face, in hopes that he could be identified after his body had to be buried.

He'd gotten divorced, his ex-wife had moved to the area where he was found, he wrote poetry himself and what looked like an evocative code he'd written down turns out to maybe be names of racehorses he was betting on. He had a brother-in-law with a name that appeared on the label of some of his clothes.

He wasn't a Russian spy or the father of a child vaguely connected to this story. He was...just some guy.

Many years ago, when we were talking about From Hell, (the comic, not the movie) Andrew told me about someone who was around at the time of Jack the Ripper (maybe a cop?) who when asked who he thought Jack was, said "just some cunt." Sorry for those who don't like the language but I think that's why the phrase stuck in my head for all these years: it feels vicious and dismissive. We want everything to be meaningful but sometimes weird horrible shit just happens to people. It makes me think of that You're Wrong About episode on the Dyatlov Pass:

Sarah and Blair do consider aliens and yeti and all the rest of the usual theories, but they consider them just for their likelihood but also what appeal they might have for people, what comfort do they bring to those who hear the stories. The incident is treated like a modern folk tale, which really is what it has become (and why I've always been drawn to it, grisly death has never appealed to me), so they look at what it tells us. So not just "is it more likely that animals ate some soft tissue of the face of one person after they were dead or that those bits were removed in torture before a mysterious murder," but "is it actually more comforting to think that nature did this, without malice or cruelty, than that humans did it with those things?" Is it more likely that the radiation on their clothes came from thorium in their camping lantern than that it came from secret nuclear tests, is it worse to live in a world of Cold War deception or one where dangerous elements were routinely used in consumer products?

I think the version of those questions here is, is it better to imagine that someone was a spy or the father of an illicit child than to believe that some people don't have friends or family to identify them when they die? That's a very comforting belief I think. It's sad to think of the people who die unnoticed or unidentified.

But at the same time...I don't know, I think there's something wonderful in all the attention that has been paid to every little thing known about this man. His cigarettes, the thread in his mended clothes, the poetry book he had a scrap of in his pocket. All these little details seem like they could be so powerful and meaningful...and if he's just a normal person than we as normal people also live lives that can be powerful and meaningful.

Reading this reminded me somehow of the time Andrew and I were in London, near Oxford Street, eating lunch at an Italian restaurant, and I was wearing a black camisole under another shirt. One of the straps on the cami broke, and it was bugging me and I didn't want to wear it the rest of the day, it was old and cheap and I didn't think I could fix it. So I just took it off and left it in the garbage can of the bathroom in that restaurant. And somehow I thought about how I'd bought that cami when I was in college years earlier, it came from Target in Alexandria Minnesota, and I used to wear it as pajamas, and etc.etc. And I had no idea when I'd bought it that it'd end its useful life this way, so far away and years later. I don't think it's as easy to identify where clothes some from now as it was with Somerton Man in the late 40s, but I did think at the time about how weird it would seem to anyone happening across the disintegrating shirt if they knew the trip it'd taken to end up where it did.

Our possessions can tell weird stories about us, because these things don't matter. None of them helped identify this man (if indeed he has been identified); only his hair has done that. Most of his belongings don't have a good explanation: why did he have clothes or thread that were unusual in Australia at the time? DNA can find out his name but can't answer those questions for us. I think we just have to be content with the answer that all our lives are rich tapestries, and they don't have to be perfectly explainable puzzle-box clues to be beautiful.

When I moved here I had an already-old laptop that'd been replaced by the one I got for uni in 2018, which was my current laptop then but is the old laptop now. But I couldn't give up this old one yet because it had all my audiobooks (oh and important documents like my Certificate of Visual Impairment but who cares about that right?).

When I tried to turn it on, it was so broken that even an external monitor plugged in stayed dark. So this week [personal profile] diffrentcolours bought a thing to extract all the data from the hard drive, and last night he set it up for me. Today I've moved most of the files I want onto my current laptop and/or Nextcloud. I've made some headway in being able to get the books to my phone, which is how I'm actually going to read them.

I'm so glad to have my books back! I had all the Terry Pratchett books (up to Snuff I believe, but that was all of them when I got them) so it was just a matter of which one to try to put on my phone first. (Which took some doing! Technology, bleh! But I've managed it now, more or less.) I've decided to start with Guards! Guards! It's a classic (in my head anyway) for a reason.

I have a complicated audiobook from the library that I'm in the middle of. It's good but full of intrigue and action and mystery. Therefore, exhausting. Much nicer to hear about dragons and Vimes and Carrot, for the millionth time.

I would have liked more sleep, but I woke up at 6 this morning.

So I watched TV (I watched four episodes of Ms. Marvel which is so much television for me, especially now that I can't really watch it at all on work days (this morning I still was relying on audio description much more than I'd usually expect to).

And I finished one library book (A Closed and Common Orbit by Becky Chambers, holy shit that was good) and read about a third of another, admittedly a short one (The Teeth of Joe Gould by Jill Lepore, a book that is about the longest book ever written (maybe, unless it wasn't written at all but it probably at least sort of was...).

And after all that, [personal profile] diffrentcolours and [personal profile] mother_bones did LFTs again. Hers is still positive, which is no surprise to her -- she says she feels okay now except for a cough that sounds nasty but apparently just happens to her any time she gets any virus -- and [personal profile] diffrentcolours's was negative which was a great surprise to him. As he was trying not to get too excited about the lack of a line showing up while he waited out the timer he'd set, he told me "If this is negative I'll do another one," and then he said "If the second one's negative..." and I had no idea about how he was planning to end that sentence but when he did I answered so quickly I probably would've sounded like I was expecting it: "...do you wanna go to the pub?"

"Yes." It was a beautiful day, I'd just been enjoying sitting in the sunny garden while the temp is still in the low 70s (it's gonna be one hundred goddam Fahrenheit degrees on Tuesday and only a few cooler on Monday) and it seemed like a great time to go sit in a pub beer garden.

He was hit by a lot of emotions and a lot of overwhelm and a lot of lingering tiredness so we didn't go crazy but we did have two nice pints (in my case, of the terribly named but tasty pale bitter Youth On A T-Shirt) and stopped on the way home for the kind of provisions, beer and snacks, that I hadn't felt up to replenishing on my own this week.

We got celebratory takeaway, from Tokyo Noodle, yum, and watched a documentary about whisky, which made me want some whisky, so I drink some of the Talisker [personal profile] diffrentcolours bought on Skye when he was there recently, and drank that while we watched another documentary about Robert Johnson -- I teased D that his still-addled brain had finally gotten down to the level for TV viewing that mine is always at, heh -- which left me very sentimental about my teenage relationship to his music, and got us talking about how differently music is perceived by someone like Keith Richards (who was interviewed for this) than it is by the youth of today, who have so much more access to so much more rock (and blues, and everything) music than even existed never mind was easy to know about than previous generations, and to what extent that's good or bad because surely it's both.

It was nice to have a halfway abstract conversation, it was nice to be eating and watching TV all in the same room (Gary loved it, and fell asleep contentedly in a chair after his efforts to get me to go to bed with him at eight o'clock proved fruitless) after twelve days of not doing those things.

I can't even say that I didn't know what I had till it was gone, I absolutely did know, I appreciated it all along, and I am so goddam grateful to have it back.

It feels like a good time to share this (unfortunately, because of an annoying thing that happened but I've been meaning to mention this anyway): Kirby Conrod (who I've already talked about how much I like ) on linguistic care work.

I can never hear enough about the overlap between disability liberation and trans liberation

Care work is a concept from disability justice and liberation movements; there is a large and interesting overlap between disabled people and trans people. It’s almost like constant societal abuse and gaslighting hurts bodyminds long-term or something, isn’t that weird? But even otherwise-nondisabled trans people have to move through the world like disabled people in certain ways. Our commonalities: we have to go to the doctor a lot; doctors tend to disbelieve our reports of our experiences and bodies; we often have to beg insurance companies to cover stuff that allows us to live our lives; our bodies are frequently paraded in normie spaces as dangerous, illogical, bad. Sometimes it is hard to move our bodies through normie spaces. These similarities are not accidental: white supremacy and structural ableism and transphobia and heteropatriarchy are all systems of power that share weapons, and whose underlying logic is sustained through the regulation of what kinds of bodies are permitted to exist, and how. Care work is one of the many tools that can be used to defend against those weapons: it is one part of a community’s refusal to be obliterated...

So what is linguistic care work? It is, essentially, the same goal and underlying mechanism: members of a community taking care of each other by way of knowing each others’ needs, limits, and desires, and using that information to create joyful ways of relating to each other. Here, I’ll give some numbered examples, because numbered examples can be a love language among some linguists, and I want you to feel included.

They offer some examples, and then say

None of this is predicated on “trying not to misgender someone” or even “trying not to mess up pronouns accidentally and get yelled at.” Linguistic care work, like any care work truly based in principles of a loving community, cannot run on shame-based fuel. Avoiding shame and harm are only the barest, most basic bar to clear—they do not constitute showing affection. Failing to abuse someone isn’t the same as loving them.

And it's nice to be reminded that the opposite of misgendering isn't "avoiding shame and harm," there is sometimes actually the possibility of more, of affection.

I'm reading Elsa Sjunneson's Being Seen now and hoo boy. I love it but I'm having to read it in like little sips. It's a lot if you're blind and from a similar background (she's only a couple of years younger than me, she's from the U.S. which means she grew up with similar schools and access to the built environment and legal protections, and we're both white).

I'm hearing and she's Deafblind, and our lives differ all other ways (except we're both bi; a sighted bi friend who also got this book from the library said she fell in love with Elsa a little when she talked about passing as straight when she's bi as an example of problematic passing): I envy her the solo sports (ballet, swimming, aikido) that helped her acquire the kind of positive relationship with her body that I really lacked as a kid (and, uh, still most of the time now). But I had a less fraught time learning to use a white cane because I don't have other disabilities or health conditions complicating things. And so on.

Anyway, there's more than enough similarities that, for example this morning I read "From early in my educational career, I was told that changing the rules for me wouldn't be fair to the other children" and I had to stop the book. I kinda wanted to go lie down! Ha. Because I hadn't thought of that in years but I also heard that all through school. An echo of old trauma washed over me: the weight of feeling that I was unavoidably too much, knowing (though I couldn't have articulated this at the time) that I couldn't expect to be as important as the other kids.

I kept listening to it on my walk to work but wondered if this was a good idea when I almost started to cry, heh.

It's such a gift that she's reading the audiobook herself too. The sentence before the one I just quoted: "When you're mainstreamed, there is immense pressure to confirm." And after she says "mainstreamed" there's this little sigh of a type I don't remember hearing in a non-fiction audiobook: no drama to it, it's very real and feels inescapable, like there's no way she could think about the topic of this sentence without that sigh.

It's a moment any other disabled person can recognize. Maybe we've had that specific experience (I did!) but even if not we're all gonna have sighed like that.

Today at work, J said "Did I tell you about the book I read over the weekend? It is very sci-fi."

"I don't think so," I said. The books he'd recently told me he'd read were more fantasy.

"It is called Project Hail Mary," he managed to say before I interrupted:

"I was nearly late getting here today because I lost track of time reading that book," I said.

"I did think 'I bet Erik would like it'," he told me, clearly pleased that he had been right.

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June 2025

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